The State of Florida Children's Medical Services, in partnership with the University of Florida Craniofacial Center, offers the following free services to families with children who have facial differences and professionals in the industry:
The Florida Cleft and Craniofacial Network sponsors a national Hotline to assist people in obtaining information about cleft lip, cleft palate and other craniofacial anomalies. This hotline is available to parents, affected individuals, professionals and other interested persons.
This line is answered during office hours by a professional and voice mail is available after hours.
- how to feed new born babies with clefts
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locations of nearby cleft palate teams
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links to to the local family network
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contact information of other parents who are willing to share their experiences
CAMP
The Florida Cleft and Craniofacial Network provides three annual camps around the state of Florida for children with craniofacial differences and their families. For a full schedule and contact information, please visit:
http://www.cleftnetwork.com/camps
FURTHER INFO
For further information regarding the Florida Cleft and Craniofacial Network and the Florida Cleft and Craniofacial Hotline please visit FCCN website at:
www.cleftnetwork.com
TEAMS OF PROFESSIONALS IN FLORIDA
WEST FLORIDA
PANAMA CITY
Director: Patrick Kelley, MD
Contact: Linda Chan, RN
Phone: 850-872-4700/CMS or
1-800-299-4700, ext. 160
FAX: 850-872-4817
email:linda_chan@doh.state.fl.us
PENSACOLA
CMS Cleft Palate Clinic
Director: Edward R. Westmark, M.D.
Contact: Jane Morgan, R.N.
Phone: 1-800-381-3685
OR 850-484-5040 ext 1209 (CMS)
Fax:850-484-5189
email:jane_morgan@doh.state.fl.us
NORTH CENTRAL REGION
COCOA/ROCKLEDGE
Cocoa/Rockledge Cleft Palate Team
Director: Roxanne Johnson-Giebink, M.D.
Contact: Deborah Snow, RN
Phone: 321-690-3850
Fax: 321-690-3887
GAINESVILLE
University of Florida
Craniofacial Center
Center Director: William N. Williams, PhD
Medical Director: John Nackashi, MD
Contact: Sandra Dean, RN
Phone: 352-334-0228
Toll-free: 888-792-8882
email:deansz@peds.ufl.edu
ORLANDO
Team Leader: Ben Guedes, MD
Contact: Nancy Sutter, RN
Phone: 407-856-6519, ext. 137 (CMS)
WINTER PARK
Central Florida Cleft Palate Team
Director: Christopher G. Rafferty, DMD
Also Frank Stieg, MD
Contact: Debie Capers
Phone: 407-629-4444
JACKSONVILLE REGION
JACKSONVILLE
Clinical Director: John Obi, MD
Coordinator: Nikki Anson, RN
Phone: 904-633-0935 Toll-free 877-431-6739
TAMPA BAY REGION
FT. MYERS
Director: John Ritrosky, Jr., M.D.
Contact: Kimberly Bemis, RN
Phone: 239-433-6723
Toll Free: 1-800-226-3290
email:Kimberly_Bemis@doh.state.fl.us
LAKELAND
Cleft Palate Team
Director: Bill Ray, MD
Contact: Cristie Dudeck, RN
Phone: 863-701-1151 ext. 150 or 1-800-741-2250
email:Cristie_Dudeck@doh.state.fl.us
SARASOTA
Director: Robert Shamsey, M.D.
Contact: Dana Dickson, RN
Phone: 941-361-6250 (CMS) or 1-800-235-9717
email:Dana_Dickson@doh.state.fl.us
TAMPA/ST.PETERSBURG
Tampa/St. Petersburg Craniofacial Center
Director: Mary H. Pavan, MD
Contact: Heather Sabella, RN
Phone: 813-396-9711 or 1-877-511-1734
Additional contact: Taryl Crisp, RN
Phone: 727-893-2775, ext. 156
email:heather_sabella@doh.state.fl.us
SOUTH FLORIDA
FT. LAUDERDALE/HOLLYWOOD
Cleft & Craniofacial Clinic
Director: Eric Cameron, MD
Contact: Bobby Brasher, ARNP
Phone: 954-986-6314
email:BBrasher@mhs.net
MIAMI
The Craniofacial Center at Miami Children’s Hospital
Director: Mislen S. Bauer, MD
Contact: Carmen R. Duque, MSN, ARNP, Program Coordinator
Phone: 305-662-8237
email:carmen.duque@mch.com
South Florida Regional Cleft Lip/Palate & Craniofacial Anomalies Center
Contact: Maria Z. Santiago
Phone: 305-243-3248
WEST PALM BEACH
CMS Craniofacial Team
Director: Phillip Colaizzo, MD
Contact: Eleanor Dames, RNS or Jill Villano, RN
Phone: 561-881-5040
NOTE: This list is provided as a service for members of FCPA and their patients. Inclusion in the list does not imply membership in the Association, nor assurance that an appropriate scope of service is provided.
The Florida Cleft and Craniofacial Network can provide further information about selecting an appropriate team for the care of a person with a facial difference.
Call 1-800-726-2029 to request a pamphlet.
