The State of Florida Children's Medical Services, in partnership with the University of Florida Craniofacial Center, offers the following free services to families with children who have facial differences and professionals in the industry:
The Florida Cleft and Craniofacial Network sponsors a national Hotline to assist people in obtaining information about cleft lip, cleft palate and other craniofacial anomalies. This hotline is available to parents, affected individuals, professionals and other interested persons.
This line is answered during office hours by a professional and voice mail is available after hours.
- how to feed new born babies with clefts
-
locations of nearby cleft palate teams
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links to to the local family network
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contact information of other parents who are willing to share their experiences
CAMP
The Florida Cleft and Craniofacial Network provides three annual camps around the state of Florida for children with craniofacial differences and their families. For a full schedule and contact information, please visit:
http://www.cleftnetwork.com/camps
FURTHER INFO
For further information regarding the Florida Cleft and Craniofacial Network and the Florida Cleft and Craniofacial Hotline please visit FCCN website at:
www.cleftnetwork.com
TEAMS OF PROFESSIONALS IN FLORIDA
WEST FLORIDA
PENSACOLA
CMS Cleft Palate Clinic
Director: Edward R. Westmark, M.D.
Contact: Terri Walsh, RN
Phone: 1-800-381-3685 ext 1233
OR 850-484-5040 ext. 1208
Fax:850-484-5189
Terrijane_Walsh@doh.state.fl.us
Frances Shell, Parent Advocate
Phone: 850-476-2701
NORTH CENTRAL REGION
COCOA/ROCKLEDGE
Cocoa/Rockledge Cleft Palate Team
Director: Roxanne Johnson-Giebink, M.D.
Contact: Joelle McVicker, RN
Phone: 321-639-5851
Fax: 321-504-2001
email: McVicker_Joelle@doh.state.fl.us
GAINESVILLE
University of Florida
Craniofacial Center
Clinic Director: Virginia Dixon-Wood, MA,CCC-SLP
Clinic Coordinator: Lyuba Wharton
Medical Director: John Nackashi, MD
Contact: Virginia Dixon-Wood, MA,CCC-SLP
Phone: 352-334-0709, 352-334-0214
Fax: 352-334-0245
Toll-free: 1-800-726-2029
email: lwwharton@ufl.edu
ORLANDO / WINTER PARK
ORLANDO
Cleft Team Medical Director: Dr. Frank Stieg
Contact: Roland Eldred (Rook)
Phone: 407-858-5582
Fax: 407-858-6144
JACKSONVILLE REGION
JACKSONVILLE
Clinical Director: Jeffrey Goldhagen, MD
Coordinator: Nikki Anson, RN
Phone: 904-633-0935
Fax: 904-633-0921
email:nikki.anson@jax.ufl.edu
TAMPA BAY REGION
FT. MYERS
Director: Piedade Silva , MD
Contact: Rowan Levehagen, RN
Phone: 239-433-6723 ext 157
Toll Free: 1-800-226-3290 ext 157
email: rowan_levenhagen@doh.state.fl.us
LAKELAND
Cleft Palate Team
Director: Bill Ray, MD
Contact: Cristie Dudeck, RN
Phone: 1-800-741-2250
Fax: 863-413-3595
email: Cristie_Dudeck@doh.state.fl.us
SARASOTA
Director: Robert Shamsey, M.D.
Contact: Kim Marino, RN
Phone: 941-361-6250 (CMS) or 1-800-235-9717 ext 145
email: Kimberly_Marino@doh.state.fl.us
TAMPA/ST.PETERSBURG
Tampa/St. Petersburg Craniofacial Center
Director: Mary H. Pavan, MD
Program Coordinator: Heather Soechtig, RN
Phone: 727-217-7853
Additional contact: Taryl Crisp, RN
Phone: 727-217-7816
Tampa Contact: Sheila Keiser, RN
Phone: 813-396-9777
email:heather_soechtig@doh.state.fl.us
SOUTH FLORIDA
Ft. Pierce
Contact: Inge Klimkiewicz, RN, MSN
Phone: 772-467-6000, ext 208
email:Inge_klimiewicz@doh.state.fl.us
FT. LAUDERDALE/HOLLYWOOD
Cleft & Craniofacial Clinic
Director: Eric Cameron, MD
Contact: Bobby Brasher, ARNP
Phone: 954-265-6314
954-265-6378
email:BBrasher@mhs.net
MIAMI
The Craniofacial Center at Miami Children’s Hospital
Director: Mislen S. Bauer, MD
Contact: Anna Pelligra, ARNP
Clinic Coordinator : Leyna Orta
Phone: 305-662-8237
Toll-Free: 1-800-662-8502
email:anna.pelligra@mch.com
BROWARD
CMS Cleft Clinic
1625 SE 3 Ave, Suite 415
Fort Lauderdale , FL 33316
Contact: Sherry Sharp, RN
Phone: 954-713-3100
Email: sherry_sharp@doh.state.fl.us
WEST PALM BEACH
CMS Craniofacial Team
Director: Phillip Colaizzo, MD
Contact: Suzanne Coleman, RN
Phone: 877-822-5203 ext. 2247
or 561-881-5040 ext. 2247
email:Suzanne_Coleman@doh.state.fl.us
NOTE: This list is provided as a service for members of FCPA and their patients. Inclusion in the list does not imply membership in the Association, nor assurance that an appropriate scope of service is provided.
The Florida Cleft and Craniofacial Network can provide further information about selecting an appropriate team for the care of a person with a facial difference.
Call 1-800-726-2029 to request a pamphlet.
