Florida Cleft and Craniofacial Network

Services:

The State of Florida Children’s Medical Services, in partnership with the University of Florida Craniofacial Center, offers the following free services to families with children who have facial differences and professionals in the industry:

  • Assistance to hospitals and families in obtaining specially designed bottles and nipples for feeding.
  • Printed materials offering a wide range of helpful information.
  • Links to to the local family network.
  • Contact information for treatment centers within the state of Florida.
  • Assistance in matching families and professionals with centers closest to their community.
  • Assistance with scheduling specialists from various craniofacial centers to visit the birthing hospital and provide education about care and feeding for children born with cleft lip/palate or other craniofacial differences.

To obtain any materials or learn more about available services, please visit the FCCN website or contact Holly Shenk, RN at the University of Florida Craniofacial Center at (352) 627-9326 / toll free1-800-726-2029 or via email at shenkh@ufl.edu

Hotline 1-800-726-2029

The Florida Cleft and Craniofacial Network sponsors a national Hotline to assist people in obtaining information about cleft lip, cleft palate and other craniofacial anomalies. This hotline is available to parents, affected individuals, professionals and other interested persons.

This line is answered during office hours by a professional and voice mail is available after hours.

Examples of information provided:

  • How to feed new born babies with clefts.
  • Locations of nearby cleft palate teams.
  • Links to to the local family network.
  • Contact information of other parents who are willing to share their experiences.

Camps

The Florida Cleft and Craniofacial Network provides three annual camps around the state of Florida for children with craniofacial differences and their families. For a full schedule and contact information, please visit: http://www.cleftnetwork.com/camps.